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Cameron Boyce's Parents Detail His Medical Condition Before His Passing

Cameron Boyce's Parents Detail His Medical Condition Before His Passing

Cameron Boyce‘s parents are sharing more information about his medical condition before his untimely passing earlier this year.

Victor and Libby Boyce sat down with NBCLA in hopes to bring awareness to SUDEP – Sudden Unexpected Death in Epilepsy.

Cameron was diagnosed with epilepsy when he was 17-years-old. He had a total of five seizures in the time between being 17 and when he passed. He had his first seizure when he had some friends sleeping over. It was early in the morning and they witnessed him,” Libby explained.

She went on to say that Cameron quickly recovered after the first seizure but doctors could not figure out the cause. After his second seizure a year later, he was officially diagnosed with epilepsy.

Victor added, “His cause of death was Sudden Unexpected Death in Epilepsy…Two months after he passed, that was the first time I had ever heard of SUDEP.”

The couple hope that The Cameron Boyce Foundation will help further educate people about epilepsy and encourage research on the condition as well as provide support to the family of those affected.

Hear all that Victor and Libby Boyce had to say below…

Karan Brar, Sophie Reynolds, & Cameron Boyce's Family Launch 'K(NO)W SUDEP NOW'

Karan Brar, Sophie Reynolds, & Cameron Boyce's Family Launch 'K(NO)W SUDEP NOW'

The Cameron Boyce Foundation has teamed up with the Epilepsy Foundation to launch a new initiative, K(NO)W SUDEP NOW!

The late actor’s friends Karan Brar and Sophie Reynolds, and his family, Victor, Libby and Maya, appear in a video message to talk about the fight to end SUDEP, Sudden Unexpected Death in Epilepsy.

K(NO)W SUDEP NOW aims to bring awareness and to end sudden unexpected death in epilepsy through education and helping accelerate research.

“The Cameron Boyce Foundation & @epilepsyfdn are teaming up in the fight to end SUDEP. Check out @knowsudepnow to learn, share, and donate so we can work together and save lives. 💜,” Karan wrote on social media.

For more information, visit KNOWSUDEPNOW.org!

Cameron Boyce's Family - Sister Maya, & Parents Victor & Libby - Honored at Heller Awards 2019

Cameron Boyce's Family - Sister Maya, & Parents Victor & Libby - Honored at Heller Awards 2019

Cameron Boyce‘s family pose for a picture on the red carpet at the 2019 Heller Awards held at Taglyan Complex on Thursday night (November 7) in Los Angeles.

The late Descendants actor’s parents, Victor and Libby, and sister Maya, represented the Cameron Boyce Foundation, which was honored with the Impact Award.

In memory of Cameron, the organization provides young people with creative outlets to support the causes he was passionate about, including ending gun violence, providing clean water and advocacy for epilepsy awareness.

One of Cameron‘s best friends and co-stars, Booboo Stewart, was also at the event.

The Heller Awards are presented to distinguished individuals for excellence in the talent industry – managers, talent agents, and casting directors

10+ pics inside of Cameron Boyce‘s family at the 2019 Heller Awards

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Victor Boyce Recalls His Strongest Memory He Has of Cameron Boyce Following His Shocking Passing

Victor Boyce Recalls His Strongest Memory He Has of Cameron Boyce Following His Shocking Passing

Victor and Libby Boyce sat down for their first interview with Good Morning America this morning (August 15), just a month after their son, Cameron Boyce‘s unexpected death.

The two chatted with Robin Roberts about the legacy of their son and explained how Cameron‘s epilepsy didn’t present until his mid-teens.

Cameron had his first seizure at 16, “and then until he had his second one, he wasn’t considered as having epilepsy, and that was when he was 17, going on 18,” Libby shared. “He only ever had five seizures, and the fifth one is what — is the one that he died from.”

Victor added that physicians tried to solve what was causing his seizures, too. However, nothing ever showed.

“They tried to induce him to seize with strobe and different methods. Never seized. And he only ever had seizures while he slept,” he says.

Victor also shared his strongest memory of Cameron just before he died: “I was sitting on the couch, watching whatever, and I hear the door open … And he comes strolling in with his cup of juice or whatever he was drinking and he had just shaved because he had a little goatee and beard, and I was just so happy to see him. I gave him a big hug.”

“And it was just cool that, you know, here’s my now 20-year-old son, just drove up in his car from his house and he’s coming to visit me, and like, I’m thinking this is how it’s going to be. It’s going to be cool,” he said. “That’s my favorite memory right now, because it was the last time I saw him just, like, being an adult and doing his thing.”

Watch their full interview below:

Cameron Boyce's Parents, Victor & Libby, Give First Interview A Month After His Passing

Cameron Boyce's Parents, Victor & Libby, Give First Interview A Month After His Passing

Victor and Libby Boyce, the parents of late actor Cameron Boyce, are opening up about their son in a new interview with Good Morning America.

The two sat down with Robin Roberts on the program and opened up about how they had just had dinner with Cameron hours before his unexpected passing.

“The night he passed away, we were out to dinner with him just hours before,” Victor shared. “It was a completely normal, beautiful family night out to dinner.”

He added, “There was no indication that anything was wrong. I mean there was no way to know in hours my son would be dead. Like, it was just staggeringly crazy and horrible. And we were texting that night.”

He and Libby also opened up about how Cameron was truly finding his voice in his charity work.

“He loved life. This is, for me, the hardest thing. He was in a place where he was truly happy. I mean, Cameron was always happy. Never a negative thing came out of his mouth.”

Libby continued, “He was really getting into the charity stuff, really getting into what he wanted to do with his voice, which is what we always told him to do,” she said. “Use your voice. Use it to make positive in the world, and that’s what he was starting to do.”

You can see more of their interview on Good Morning America on Thursday, August 15th.

Click inside now for a sneak peek! More Here! »