Gaten Matarazzo Opens Up About Living With a Rare Disorder

Gaten Matarazzo Opens Up About Living With a Rare Disorder

Gaten Matarazzo has won our hearts with his work on Stranger Things and now he’s making us love him more after he bravely discussed living with a rare genetic disorder.

The 14-year-old actor is battling cleidocranial dysostosis and he talked about it during an appearance on The Jonathan Ross Show.

“It’s a condition where you’re born without your collarbones,” Gaten said (via EW). “I don’t have any. It affects your facial growth, your skull growth, your teeth – that’s why I don’t have any [teeth], these are fake right here. I have teeth, but they’re all baby teeth. I need a lot of surgery.”

“I have a really mild case and a lot of people have it much worse than I do,” Gaten added. “I feel like putting it into the show has really raised awareness for it. And I’m lucky that mine is very mild, but now that it’s in my genes´┐Ż it’s usually passed on by genes, it wasn’t for me, it just happened. So now that it’s in my genes, I have a 50 percent chance of passing it down in my genes and it could be much worse for them.”

Gaten says that the creators of Stranger Things decided to make his condition a part of the show and he is glad to showcase it on the series.

“I just wanna raise awareness for it and let people know it’s not something that they should be afraid of showing,” he said.

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Posted to: Gaten Matarazzo